Still ticking, and starting to have more fun

Busy busy busy.

The month started with Boss and Grad Student away at a conference, a conference for which we just barely managed to get the data in time to put into posters to present at the conference. Evidently there was also in incident where Grad Student's poster got THROWN OUT by the person cleaning his hotel room, and he had to go dumpster diving in the basement of a large city hotel to recover it. I'm told it wasn't even sticky when he found it. *shudder*

After they got back from conference #1, we had to get going on data for conference #2, which is right now. So for the past 3-4 weeks I have been at least up to my neck, and frequently up to my eyebrows, in all things work. Last week I stayed till 7pm one day, and 8pm on Friday, this was because the buttload of data we'd generated needed to be organized and categorized and made to mean something exciting.

Oh, and in the middle of this up-to-the eyebrowsyness, my parents were in California, so one Thursday evening after work I hung out in La Jolla, got a haircut, got Matt to drive up from our flat to meet me for dinner, then at 8pm I set out Northwards to pick up the parents from LAX (at 10pm) and drive us all to Granny's. All of which went very smoothly, no evil traffic, no delayed planes, no lost luggage (hooray). Matt took the train up to LA the next day, which did no go so smoothly at all. What should have been a journey of 4 hours door to door, with 3 of those hours spent on a comfy squishy train seat turned into 9 hours door to door, with 7.5 of those hours spent in a mysteriously too-narrow train seat that caused Matt to have interesting back and shoulder spasms the rest of the night.

That Sunday was my Granny's 90th birthday party, which went exceedingly well. She's a bit resistant to fuss and attention, but it was a low key enough affair that she was really happy. I got the bonus of finding out that the pearl earrings I'd bought her were extra appropriate because pearl is June's birth stone. Who knew?

The NEXT weekend, my parents and sister came down to visit with us, on the train (only 50min late this time), and in between trips to Marshall's and Designer Shoe Warehouse we watched a World Cup game in the bar of a casino, got pedicures involving a hand-painted flower on each big toenail (that was just me and my sister) and went to a cousin's university graduation ceremony.

That was also the weekend of Matt's and my first wedding anniversary. We went to the Wild Animal Park, with the aim of riding on a hot air balloon, but the wait for the ride was far too long, so we went back the next week. It was fun.

It was nice having a sort of re-tread of last year, with family around, a cousin graduating from UCSD (different cousin), and everybody reminiscing about our wedding day. The year has gone FAST, particularly the 2006 part of it. I hadn't realized how worried I was about my family's response to my scar, but Mum and an Aunt were pleasantly surprised, my sister found it more obvious than she'd expected, and my uncle enthused about how great I look, and how whatever I've been doing, I should keep doing it. I managed to avoid saying something about "oh? having cancer and getting a big chunk taken out of my face? I should keep doing that?".

So yeah. The looming depression that I have not mentioned much (if at all), and that led me to a lovely melt down at work last month, that depresion is being dealt with a bit. I'm in counselling, that helps, this time I'm not doing it as quickie crisis-fixing, I plan to do this for a while and really get myself on a more even keel.

The first half of this week I finished up two papers, and now I am taking the rest of the day off, starting with sushi for lunch with a good friend.

Whew!

I usually score "you have both male and female brain" on these types of things. I'm glad of it, I wouldn't like my brain to be so heavily influenced by the presence of my lady parts.

You scored as Either. You brain is neither specifically male nor female dominated in the way you perceive things and as bad as this sounds it can easily mean that you are capable of combining both limiting gender aspects to your advantage. Rather than being genderless you are possibly able think freely. This does not nec. mean that you are bisexual or androgynous or indecisive, though it might. Either 68% Male 57% Female 50% Neither 36% Should you be MALE or FEMALE?* created with QuizFarm.com

What?

I'm the sappy one that dies young? Shish. Can't I be Jo?

Which Classic Female Literary Character Are you?

You're Beth March of Little Women by Louisa May Alcott!
Take this quiz!








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Snow Day

Late February in  Laguna, looking out over the Anza Desert. Brrr.
... See my Tabblo>

This is a test-post for a nifty new photosharing site called tabblo. I've had fun playing with it, it makes it possible to arrange photographs more like an album or scrap book, with different size prints and varied layouts. (I am not being paid to say this, I got forwarded an invite to try the beta and figured I'd give it a go. I got sucked in by two things: the ability to transfer all your flickr photos right away, and the fact it talks to my blog.

I like the way the layout works for showing a bunch of shots of something at once.

Hmm...

Halfway between sociology and engineering lies...Neuropathology? Oddly, this makes sense to me, especially if you add in my long term goal to study epidemiology or something similar.

You scored as Engineering. You should be an Engineering major! Sociology 92% Engineering 92% Psychology 83% English 83% Philosophy 83% Biology 75% Anthropology 75% Chemistry 67% Dance 67% Mathematics 58% Theater 58% Journalism 42% Linguistics 42% Art 25% What is your Perfect Major? (PLEASE RATE ME!!<3) created with QuizFarm.com

Happy Easter *EDIT* NO CHOCOLATE RABBITS WERE HARMED IN THE MAKING OF THIS POST

My parents and sister are on their way to Rome today, for Easter and a conference. Not envious. Not in the slightest.

*sigh*

I remember seeing the biggest Easter eggs known to humanity in shop windows in Rome just before Easter, I was seven years old, so the giant eggs were as impressive to me as the Roman ruins and marble cathedrals. The price tags were incredible too, since Italian Lire are very small, all the prices were in the hundreds of thousands, they weren't actually expensive, but all the zeros made them look it. Maybe I will swing by Cost Plus and get some pannacotta and bacci so I can pretend I'm in Rome too. I'll skip the scary seafood pizza, complete with squid, my sister was a great fan, but I was traumatized by taking a bite of folded over pizza and having a rubbery tentacle FLOP out at me. Of course I immediately shrieked and flung the offending slice from my person. Poor Evie, deprived of her tentacle pizza.

Oh well. Happy Easter Week.

Places I have been

There's a whole lot of empty space there. I need to get myself to South America, Africa, and some Asian countries.



create your own visited countries map
or vertaling Duits Nederlands

Pancake Day

Tonight, while my party-animal American friends are whooping it up at a Mardis Gras party, with beads and hurricanes (no pun intended), I shall be marking Shrove Tuesday by making crepes stuffed with feta.

This is not through some stubborn refusal to take on the local traditions, Matt and I get up so early on week days that a late night drinking fest is a really bad idea. I think it is rather symbolic that I grew up thinking of Fat Tuesday as "Pancake Day", the day when we often had crepes for school lunch AND made them for dinner at home, with a vague idea that it's the last day before lent, and it's all somehow linked to Easter and Jesus and other random Christian stuff. Please note that I went to a Presbyterian school, but was raised atheist. Meanwhile, in the U.S., Fat Tuesday is Brazilian showgirls flashing their boobs at drunken frat brothers in the middle of a crowded street in New Orleans.

Pretty different.

Perhaps I should combine the traditions and make my crepes topless. Me topless that is. Or in a sparkly bikini and high heels, since the idea of making anything involving hot fat on a stovetop without a top on is a little scary. No photographs will be forthcoming. It might be worth it just to see the look on Matt's face. "No sweetie, I'm not starting to cook yet, I've just got to go change..."

All Clear

EVERYTHING came back all clear. All five moles were normal, no melanoma in the lymph node, no melanoma left in the margins they took (which means they didn't even need to take out as much as they did, but it's done now so...oh well).

Whew.

So now I can just focus on trying to look after my healing incisions. No chemotherapy or further excisions needed! I was actually very surprised that I didn't even have a whacko mole, they've been following a trend of being "abnormal", I'm glad they're gone now so I don't have to be super vigilant of 5 different odd looking moles on my face. That was making me a little crazy already.

On Friday, when the stitches came out, I wasn't too happy with how it all looked. I was also pretty busy being relieved that I got off so lightly, and celebrating with Matt (there was wine, and congnac, and chocolate, on saturday there was peach lambic and more chocolate) But by Sunday the upper half of the loooong incision had healed and is already starting to vanish. It's just a LINE now, a thin line at that, if that's what it looks 1.5 weeks post op, it'll pretty much vanish over the next few months. The lower half...I'm not examining too closely yet, it's still healing up, and I know it'll be more visible, a thicker line, but it'll probably look a lot better than my paranoid imaginings.

Sunday, Matt and I went up to the nearby mountains in search of snow, on the way up we took an offroad trail, so we got MUD and SNOW in one day trip. Yesterday was a public holiday, and I was in bed, napping and reading until about 10.30. With both cats flaked out keeping me company. Then my parents called and I spoke to them for about 2 hours. Lazy day.

My whole family is breathing a lot easier now. I'm so lucky to have been going to a dermatologist regularly and caught it early enough.

Question

This morning the glue on my dressings loosened enough for me to take off the surgical tape and replace it with fresh tape. So I got my first look at all the stitches and everything. Quite honestly I think it'll heal up really well but it freaked me out for the rest of the morning seeing so many stitches all over my face, and especially realizing how LONG the incision is from the melanoma.

I took a couple of photos for posterity. I think it will be good to be able to look back in a few months or a year, if I get down on the whole scarring issue. I think it will be good (if a little wierd) to have a photo I can look at and say "yeah...but I survived looking like THIS!".

So here's the question: you wanna see my new, temporary, bride of The Creature look?

We Love General Anesthetics

I spent a significant portion of yesterday unconscious, and when I came out of it I was filled with much happy love for the world (including the nurse who came over to me every once in a while to remind me to breathe properly because I kept dozing off and not breathing enough apparently). Highly preferable to lying on a table feeling no pain but being intensely aware of every tug and pull as a doctor fiddles about with your skin and stitches you up.

Now I'm a bit headachey and my face feels a little swollen, but I think that's pretty good for one large, one medium, and FIVE small incisions on my face. I'm also a little tanked up on vicodin, so I'm probably fairly incoherent.

The coolest part is that the dye they injected into the site of the tumor (so they could locate the correct lymph node) was bright blue, and now so is that part of my face! Yesterday the entire under-eye circle was this amazing bright cerulean blue. Like the height of 1980s eyeshadow tackiness, only UNDER my eye. It's already faded to a mere wash of turquoise, Matt got a photo about halfway between the peak of blueness and where I am now.

Biopsy results next Friday. I'm really glad the surgery's done with, I shall probably worry more about the results as Friday approaches.

Poor Taliesin. They didn't find anything wrong with him at the vet, so they decided to give him all his boosters while he was in there. I'm not sure this was a good idea, since I got him home last night he's been all sulky and out of sorts. Not even the mighty pull of a spoonful of yogurt tempted him out from under the bed this morning. So I left him to carry on hunching in dark corners looking miserable. I know how he feels.

I can't just muscle through this, I can't get up the day after surgery, pretend nothing happened, and go back to work and be PRODUCTIVE. I'm not allowed, in fact I've been told I might need help walking to the bathroom, and that I should not be left unattended for 24 hours afterwards. Probably it's the general anesthetic that will have the effect of making me groggy etc. Matt has to work, and luckily one of our closest friends, who also lives in the building, has that day off and will be on supervisory duty. I'm not sure if he'll be hanging out at our place, or just on call. I left Matt to sort that out because the thought of asking for that kind of help makes me feel sick. I hate helplessness, absolutely hate it. Realizing how much I wanted my boss to give me work to take home with me for while I'm resting up was quite a shock.

Somehow in the past 5 years I have become the kind of woman who will keep pursuing work when she's sick, even if it might make her sicker longer. I think of public holidays as a great chance to catch up on household chores, I have actually caught myself considering "doing extra laundry" as a good way to spend a "me day". I'm sure I used to be much more of a skiver, any chance to get away with not doing stuff. I used to be so bored with school, or I couldn't see much importance in getting projects done, that I'd procrastinate until the last minute and then tearfully cobble together some crap, making excuses to myself all the way.

After I graduated and met Matt, and especially after I moved jobs to this one, a job well done became such a great rewarding feeling. Perhaps I learned that hard work does pay off. Hard work paying attention and learning on the job, and also hard work fixing myself up after a long bout of depression. I'm coming to realise that work, doing stuff, being proactive, becoming a go-getting let-me-at-it kind of person is what pulled me out of the hole I was in. It also made our whole wedding planning thing work pretty well. Now all of a sudden I'm faced with a huge challenge: being able to stop.

Even as I type this I realize it's pretty ridiculous. I'm not loosing a LEG. this isn't a permanent stop. I have to face being a gibbering wreck for about 24 hours or so after surgery. Maybe not even gibbering, just disoriented and sick feeling.

I feel that I've spent far too much of my life already hiding under the covers feeling sick. I wasted somewhere between 2 and 5 YEARS not taking care of myself, crying a lot and feeling sick to my stomach just existing. Often it was helplessness that I felt. Helplessness to "fix" my life. Yay anxiety. I hope I'm just spaced out all day after surgery, the fear that is looming is that it will feel just like the pit of depression and then somehow I will get stuck there again.

Of course, I was feeling depression rear it's head before I got this diagnosis. I could go all Medium on the facts and try to convince myself that I felt this coming and was mourning it in advance... or I could skip the BS hokey pokey and admit that maybe go! go! go! go! go! go! go! go! go! go! wasn't working that well as a long term life solution and I'm getting overdue for seeking a little, you know, balance.

One of the signs of this need for balance is that the day I learned the biopsies had shown melanoma, after about an hour of freaking out I started to feel good about the new challenge to overcome, because it would distract me from the lingering depression that had started to really scare me. You know something's wrong when a cancer diagnosis turns into a welcome battle with the world.

I know I will need to give myself some "me time" (sans laundry folding), to figure out what I need once I'm done with getting carved up and biopsied. Right now I think it's ok to huddle under the covers seeking comfort. Hopefully Tali will forgive me for taking him to the vet and come and sulk with me instead of at me.

Happy Birthday to Me

Sunday was designated stuff-your-face day, Matt woke me up by bringing me a Coldstone Creamery chocolate raspberry ice cream cake in bed. With candles that look like crayons! My initial plan was to have icecream cake and a bottle of zinfandel for breakfast, but since I wanted to go to yoga we saved the wine for AFTER the workout. We also had steak for dinner, followed by more cake. Yum.

Today we are "celebrating" by having the pre-operative consultation with the surgeon, getting the stitches taken out of my leg, then going home for leftover london broil steak and the last bit of cake. with super yummy framboise lambic to wash it down.

Oh, and Tali's getting checked out by the vet today, poor little bugger has been acting strange, like he might be about to scent-mark stuff, even though he's never been a spraying kinda guy. So he gets to have his nethers probed by a stranger. Being away from his sister will probably be the worst part of the day. They do much better going to the vet as a pair, so they can cower in their carrier together.

All Is Vanity

While faffing about attempting to resize a photograph to send in for a passport I was seduced by the sparkly lure of airbrushing. First I used it to conceal the incision that will soon be replaced by a much larger one, then I dotted out a couple of obvious pimples. By that point I was far too mad with the new power to make up for my inexpert application of concealer and powder, and I zapped away the under-eye shadows too!

I'm officialy a Californian. Or maybe it's just reaching 26.

If you go to the flickr page and flip back and forth between the two photos it's pretty cool, just like one of those "debunking the beauty myth" websites showing magazine covers.

Don't ask

Molemap
Originally uploaded by Rosemary Grace.

for some reason I felt compelled to make this in word just now.

I think it's pretty self explanatory.

Status Report

OK, the melanoma on my leg was teeny-tiny (less than 1 mm) so they only needed to take out a 5 mm margin, which was done on Tuesday, leaving an incision about 4-5 cm long, with five stitches in it. Just like the first "big" incision I had on my face, which has now faded to a 4cm line that only shows if the light catches it right.

The one on my face was 1.6 mm thick, which makes it on the small side of "intermediate", since I'm on the young side for such things they are going to do a sentinel lymph node biopsy [>] to check for signs of spreading through my lymph system. The margins of this tumor also have to be removed, with a 10 mm margin (eek), which means a circle about the size of a US quarter, or a UK 10p piece, this will be done using the MOHS technique [>]. The Mohs is done with a local anesthetic, which would be kind of disconcerting apart from the fact that I've done this before, and now I won't be lying on the table freaking out about massive scarring, because the first big incision has healed pretty damn well. I bet you couldn't even look at my flickr account and tell me where that first big incision was. Unless you find the photo of me with a pressure bandage on my face.

OK, maybe I will be freaking out a little, but not as much as the first time. I know there's not much I can do but trust the surgeon's skill and take good care of it while it heals. That, and start a fund for laser resurfacing and/or chemical peels.

The lymph biopsy will be done under general anesthetic, which scares me: complete helplessness = baaaaaaaaad. Complete helplessness while somebody works at my throat with a scalpel = fucking scary. I have to keep reminding myself that this is not heart surgery, and that lots of people have general anesthetics for mundane things like wisdom tooth extraction.

Now we get to the part that will probably make everyone think I'm insane.

While I'm "out" under general anesthetic, the surgeon is going to remove five other moles from my face. Yes I have that many, no I don't look like a leopard. They all look pretty much like the innocuous moley that turned out to be harbouring 1.6 mm of cancer. My moles all look pretty normal: even colour, symmetrical shape, not too big, and most of them have been abnormal. Now two have been cancerous. My dermatologist, myself, and the head and neck surgeon all reckon it's a good idea to remove and biopsy the significant moles. If they're normal, we can be relieved, if they're not normal it's better to know now, and deal with it pronto. I am going to feel like the Bride of Frankenstein for a while, with stitches on my leg and on 5 small and one sizeable incision on my face.

I'm all calm right now. Listing off how many chunks of my face are going to be removed, and they might have to go back for more later. The thing with this whole experience is that when I'm freaking out, I'm freaking out WAY too much to type or write coherantly. I've been crying in my car a fair bit, unfortunately my long commute gives my brain plenty of time to run through worst case scenarios to itself. I'm either wailing inside and wanting to run far far away or hide under my bed with a cat, or I'm dealing with life. Dealing pretty well I think. I'm trying to make sure I let myself say I'm scared, and cry a bit, trying to let some of it out so that I can hold it all together enough to feel proud of myself.

Sod's Law

I didn't mention this before, because it's become kind of routine for me to have a dodgy mole removed when I go to the dermatologist for a mole-patrol checkup, but I had another two dodgy moles removed right before Christmas. The incision in my left shin healed wonderfully. By Sod's Law, the incision on my left cheek, right next to my nose was the one that didn't heal well. It wasn't an infection, the culture they took came back negative, but it was inflamed and didn't want to close. So I've been keeping it ointmented and covered to try to minimize scarring.

Waste of time.

Most of the moles I've had removed (3 out of 5 until this crop) have turned out to be "abnormal" in a benign way, and have required further margin to be surgically taken out. Sod's Law made sure that 2 of those were on my face (the other abnormal one was on my scalp).

Sod's Law has really outdone itself this time though. Both biopsies came back as melanoma. Very SMALL melanomas, but melanomas nonetheless. That's cancer, the BIG C. It's the nastiest skin cancer, most likely to spread to other tissues, most likely to recur. It's actually the best cancer to have if you're going to have a nasty spreading type cancer: at least it's highly detectable, and early detection means the only treatment required is excision and vigilance. No chemo. Thankfully.

So, back to my lovely dermatologist on Tuesday, to remove margins from my shin. She looks like a prettier version of Janice, Chandler's irritating recurring girlfriend on Friends, so I will call her Dr Janice. Then I will see a specialist in head and neck dermatology and surgery on Wednesday to discuss the offending site on my left cheek, and the possibility of doing a lymph node biopsy. I want the biopsy, I want to KNOW that it's clear, not assume.

Of course, I'm sure I'm sounding (reading?) much too calm. This is because I got the phone call around noon, and have already quietly freaked out about it by myself, then told a friendly coworker, and freaked out a bit more, then told my friendly boss, been sent home, and bought a fancy shower curtain and fuzzy bath mat as retail therapy. I've had 5-1/2 hours to digest this. There will be further freakouts, I may even post during one, they make good reading (if you want to see what I look like freaking out and questioning my existance and role in life etc., just check out 2001-2002 in the archives).

Matt just came home, and I told him right away. He takes my word for medical detail, so hopefully he won't be *too* worried, not constantly at any rate. I'm not going to tell my parents, not until I've had the margins cleared and (hopefully) get the all clear from a lymph node biopsy. My mother's brother died of internal melanoma, it would be such a nightmare to put her through the waiting and worrying again, so I will tell them when it's done and we're in vigilance mode, not treatment mode.

It's freakish and frightening, but it's not the threat-of-death diagnosis a lot of cancers are. More the threat of fear of recurrance and definite need for more bits of my face to get chopped out. I'd been wondering if I should have the remaining moles removed prophylactically, now I'm sure I will.

Shallow though this sounds I'm just REALLY glad this diagnosis came after the wedding. I think I'm going to be looking at a couple of years at least of babying incisions, and then saving up for a laser resurfacing or something. On some level I've been expecting this, you don't have 5 moles removed in 3 years, and have 3 of them turn out ot be abnormal, without something being a bit fishy.

Strike that

Bugger the giving up sweets. Some Januaries it works for me, some it doesn't. A week of sleeping like crap and weird hormone-withdrawal weeping/depression completely killed that. Forbidding myself from eating sweets of any kind was depriving me of much needed serotonin. So I ate a lemon poppyseed muffin. Best muffin I've had in ages.

Still haven't used the workout DVDs either.

My name is Cliche, I'll be your sporadic blogger for the evening

I bought a set of workout DVDs. In the first week of January.

And I'm cutting out sweets. For January.

HAPPY NEW YEAR!

My computer tells me it's 4am, therefore it is time to call an end to Hogmanay revelries, involving random 20 yr old finnish girls asking for the recipe for pimento cheese, old Scottish flatmates talking politics with new (ish) mexican friends...it has been a goood one for the books signifying life coming together and making an odd kind of sense of past and present. My husband is snoring. Time to go join him. Since So Cal is behind most countries in ushering in the new year.